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Post by helencrump on Aug 25, 2014 22:03:46 GMT -6
Let me preface this by saying I've cared for pts with als, so I might be biased. That's why I'm wondering how others feel about this subject.
When it first started, I only saw positive feedback. Now im seeing more and more negative comments from people that to be honest, shock me. my feed is always full of Relay for Life funraisers, and ive never seen a negative comment about relay. nor would i expect to. so, what gives with the negativity towards asking for donations for als?
opinions?
btw, did you know that servicemen/women who served in the gulf are twice as likely to be diagnosed with als?
Also, life expectancy after being diagnosed is 3-5 year? Of course, some live longer, but the majority is 3-5 years.
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Post by Deleted on Aug 26, 2014 6:23:28 GMT -6
I think that this ice bucket challenge is stupid. For one to challenge someone to do the ice bucket challenge for what ever the amount and if you don't do the challenge you pay more. For one how does anyone know if a person actually have it in their budget to donate to start off with. The second thing who's actually collecting the money and giving the money to this. I have not heard anything about the ice bucket challenge until just recently. If a person is wanting to do a fundraiser for this ALS, than do a fund raiser. But have something set up with information on the disease. And if you want to have water as a part of it, may use the local YMCA swimming pool, and ask for so much per lap in the pool. But this is strictly my opinion. I don't think it is a bad idea as far as making an awareness of the disease or donating to ALS but it's just the ice water challenge and expecting someone ten dollars if you do the challenge and 100 dollars for if you don't do the challenge is stupid. I rather ask if some can donate whatever they could afford than to expect a certain amount. Even having a jar set up and just ask for pennies is an idea. Pennies add up more quickly than what people think.
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Post by Deleted on Aug 26, 2014 6:27:42 GMT -6
A person may think that whomever their challenging may have the money to donate. I am one that don't discuss my budget with others. Too many people that I know likes to act like they have more money than what they actually have. So in reality, if you challenge someone, you actually don't know if they truly can afford at this particular time to donate to any organization.
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Post by Anonymous on Aug 26, 2014 6:57:23 GMT -6
The only negative feedback I have seen in my Facebook feed has been directed at those who do the challenge and don't donate money to ALS. When my son was challenged he was excited and wanted to do it immediately. I explained to him that we have to donate in addition to doing the ice bucket challenge. So, the two of us went online to the ALS site and donated, then he completed the challenge.
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Post by Blue Star on Aug 26, 2014 8:18:52 GMT -6
Many have added the link to thier posts & if they haven't peeps can search for it TO give. WTG Anonymous!
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Post by wilbert on Aug 26, 2014 9:29:39 GMT -6
The only negative feedback I have seen in my Facebook feed has been directed at those who do the challenge and don't donate money to ALS. When my son was challenged he was excited and wanted to do it immediately. I explained to him that we have to donate in addition to doing the ice bucket challenge. So, the two of us went online to the ALS site and donated, then he completed the challenge. I so agree! This isn't just a way to get your face or naked body in the spotlight for a day. Honestly, some of the contestants have stripped down to their skivvies....literally. One guy from Streator stripped down to his underwear. Another lady (no idea where she was from and I'm ok with that) took off a robe and had nothing on but tassles and a g string. REALLY PEOPLE? Great Cause, glad it's gone viral and that they have made alot of money in hopes to find a cure. But the fact some people use it as their one day of fame disgusts me. KEEP THE CLOTHES ON! SWIM TRUNKS OKAY. YOUR WHITEY TIGHTIES NOT. Show some RESPECT!
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Post by helencrump on Aug 26, 2014 10:11:02 GMT -6
Personally, I don't care how they perform the challenge, if they donate. In some form, at least. And challenge more to keep it going. Cheryl crow wore a shower cap while sitting in a hot tub, and announced that since she was 'cheating', she was including and extra $100 for each 'cheat'. I've seen so many have fun and show humor in doing it. Then become serious, and instruct viewers to go to the als site.
I think my fav was President and Mrs bush. It was done in humor. He was sitting at a table with his checkbook. He states he is going to pass on the challenge and make a donation, because he doesn't feel dumping ice water on his head is very professional for a previous President (or similar words). As he bows his head to write the check, Mrs Bushcomes from the sideline and dumps the bucket over his head. Then he challenged President Clinton. Teeheehee
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Post by helencrump on Aug 26, 2014 10:21:13 GMT -6
I've seen many comments that people are getting tired of the vids clogging up their feeds. To those, I say, scroll on past.
To emachine: this challenge was started by an ALS pt. And, it IS a fund raiser! That is doing brilliantly well. As he's paralyzed, and on a ventilator, going to the YMCA and swimming laps wasn't really an option. Look up the video, maybe you will have a better understanding.
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Post by helencrump on Aug 26, 2014 10:23:58 GMT -6
I think that this ice bucket challenge is stupid. For one to challenge someone to do the ice bucket challenge for what ever the amount and if you don't do the challenge you pay more. For one how does anyone know if a person actually have it in their budget to donate to start off with. The second thing who's actually collecting the money and giving the money to this. I have not heard anything about the ice bucket challenge until just recently. If a person is wanting to do a fundraiser for this ALS, than do a fund raiser. But have something set up with information on the disease. And if you want to have water as a part of it, may use the local YMCA swimming pool, and ask for so much per lap in the pool. But this is strictly my opinion. I don't think it is a bad idea as far as making an awareness of the disease or donating to ALS but it's just the ice water challenge and expecting someone ten dollars if you do the challenge and 100 dollars for if you don't do the challenge is stupid. I rather ask if some can donate whatever they could afford than to expect a certain amount. Even having a jar set up and just ask for pennies is an idea. Pennies add up more quickly than what people think. The als pt that started this has brought in millions more than before. You can also see that on the als site
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Post by sunny1 on Aug 26, 2014 11:45:17 GMT -6
Ice Bucket Challenge Donations Reach $70.2 Million
Washington, D.C. (August 24, 2014) — As of Sunday, August 24, The ALS Association has received $70.2 million in donations compared to $2.5 million during the same time period last year (July 29 to August 24). These donations have come from existing donors and 1.3 million new donors to The Association.
The ALS Association’s mission includes providing care services to assist people with ALS and their families through a network of chapters working in communities across the nation and a global research program focused on the discovery of treatments and eventually a cure for the disease. In addition, The Association’s public policy efforts empower people to advance public policies in our nation’s Capital that respond to the needs of people with ALS.
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Post by Jaded on Aug 26, 2014 12:37:28 GMT -6
I've seen many comments that people are getting tired of the vids clogging up their feeds. To those, I say, scroll on past. To emachine: this challenge was started by an ALS pt. And, it IS a fund raiser! That is doing brilliantly well. As he's paralyzed, and on a ventilator, going to the YMCA and swimming laps wasn't really an option. Look up the video, maybe you will have a better understanding. If that's the guy I think it is, wasn't he a baseball player before he found out that he had ALS, and didn't he also take the challenge himself? My son was challenged and he wants to do it, so as soon as he's done being sick, I'm going to let him do it and donate.
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Post by helencrump on Aug 26, 2014 15:22:40 GMT -6
Yes, jaded. He's the one that put the focus on ALS. Good for your son.
I see nothing different about this than the fun runs, mud runs, jump rope for heart, and every other fund raiser that focuses on raising awareness for a cause.
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Post by helencrump on Aug 26, 2014 17:39:55 GMT -6
Ice Bucket Challenge Donations Reach $70.2 Million Washington, D.C. (August 24, 2014) — As of Sunday, August 24, The ALS Association has received $70.2 million in donations compared to $2.5 million during the same time period last year (July 29 to August 24). These donations have come from existing donors and 1.3 million new donors to The Association. The ALS Association’s mission includes providing care services to assist people with ALS and their families through a network of chapters working in communities across the nation and a global research program focused on the discovery of treatments and eventually a cure for the disease. In addition, The Association’s public policy efforts empower people to advance public policies in our nation’s Capital that respond to the needs of people with ALS. It does look like even if they don't specifically mention that they donated, an aweful lot are following through. I think some don't mention the donating part because they assume by now everyone knows the drill.
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Post by Jaded on Aug 26, 2014 22:29:05 GMT -6
Yes, jaded. He's the one that put the focus on ALS. Good for your son. I see nothing different about this than the fun runs, mud runs, jump rope for heart, and every other fund raiser that focuses on raising awareness for a cause. That's what I thought. I cried when I watched that video he posted. And you're right it's not any different....
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Post by rocket on Aug 27, 2014 5:33:04 GMT -6
The dangers this challenge is doing. What next will people do for this challenge.
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